This week on the Mimosas with Moms Podcast, Abbey welcomes Leah, parent advocate for rare diseases, epilepsy, and medically complex parenting struggles! To continue to bring awareness to Birth Defects Awareness Month, Abbey and Leah talk about Leah’s personal experience welcoming her son with a rare form of epilepsy and a rare disease. After a misdiagnoses nearly ending her sons life, Leah fought for proper care for her son. How has this experience changed Leah’s family and the course of her life? Let’s talk about it, CHEERS!!
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You can find Leah:
IG @metabolic_mama
Blog – metabolicmama.org
FB /metabolicmamapde
Email metabolicmama@gmail.com
Interested in learning more about rare disease legislative advocates? Visit: https://rareadvocates.org/about-us/
And to get involved, stay updated, donate and more! Visit: Bc it’s a program created BY every life https://everylifefoundation.org
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Instagram @mimosaswithmoms
FB /mimosaswithmoms
Email 2mimosamoms@gmail.com
